Dual
Loyalty & Human Rights
In
Health Professional Practice;
Proposed Guidelines & Institutional Mechanisms
A
Project of the
International Dual Loyalty Working Group
A Collaborative Initiative of
Physicians for Human Rights
and the School of Public Health and Primary Health Care
University
of Cape Town, Health Sciences Faculty
ORDER
NOW
Table of Contents
Copyright Information
About Physicians for Human Rights
About the University of Cape Town
Preface and Acknowledgements
I. Introduction
- The
Problem of Dual Loyalty and Human Rights
- The
Concept of Dual Loyalty
- Dual
Loyalty and Human Rights
- Human
Rights, Bioethics and the Resolution of Dual Loyalty Conflicts
- The
Obligation of Health Professionals to Respect Human Rights
- Dual
Loyalty and Human Rights: The Need for this Project
- Scope
of the Project and Products
II. Dual Loyalty and Human Rights:The Dimensions
of the Problem
-
Using medical skills or expertise on behalf of the state
-
Subordinating independent medical judgment, in therapeutic or
evaluative settings
-
Limiting or denying medical treatment or information related
to treatment to an individual
-
Disclosing confidential patient information to state authorities
or powerful non-state actors
-
Performing evaluations for legal or administrative purposes
-
Remaining silent in the face of human rights abuses committed
against individuals and groups in the care of health professionals
III. Proposed General Guidelines for Health
Professional Practice
IV. Proposed
Guidelines for Practice in Difficult Settings
- Prison,
Detention and Other Custodial Settings
-
Health Care for Refugees and Immigrants
-
Health Professionals in the Workplace
-
Health Professionals Engaged in Forensic Evaluations
-
Military Health Professionals
V . Institutional
Mechanisms to Promote Human Rights in Health Practice
- Introduction
- Objectives
of the Institutional Mechanisms
- Institutional
Mechanisms by Strategy
- Employment
relationships
- Administrative
and legal arrangements to preserve professional independence
- Peer
review, professional credibility, support
- Monitoring
- Education
and Training
- Accountability
- Collective
action by the professions
- Institutional
Mechanisms by Stakeholders/Agents
- Roles
for Professional Organizations: National
- Roles
for Professional Organizations: International
- Roles
for Statutory (licensing) Bodies
- Roles
for Civil Society
- Roles
for Government
- Role
of the United Nations and Related International and Regional
Intergovernmental Bodies
- Role
of Training and Research Institutions
VI . Appendices
-
Appendix 1: Works Cited
- Appendix
2: Relevant Treaties, Professional Codes and Declarations
Footnotes
Copyright
Information
©
2002, Physicians for Human Rights and School of Public Health and
Primary Health Care, University of Cape Town, Health Sciences Faculty
All rights reserved.
Printed in the United States of America.
ISBN 1-879707-39-X
Library of Congress Control Number: 2003101403
Cover and report design: Glenn Ruga/Visual Communications
About
Physicians for Human Rights
Physicians
for Human Rights (PHR) promotes health by protecting human rights.
PHR believes that respect for human rights is essential for the
health and wellbeing of all members of the human family.
Since
1986, PHR members have worked to stop torture, disappearances, and
political killings by governments and opposition groups and to investigate
and expose violations, including: deaths, injuries, and trauma inflicted
on civilians during conflicts; suffering and deprivation, including
denial of access to health care, caused by ethnic and racial discrimination;
mental and physical anguish inflicted on women by abuse; exploitation
of children in labor practices; loss of life or limbs from landmines
and other indiscriminate weapons; harsh methods of incarceration
in prisons and detention centers; and poor health stemming from
vast inequalities in societies. PHR also works to protect health
professionals who are victims of violations of human rights and
to prevent medical complicity in torture and other abuses. As one
of the original steering committee members of the International
Campaign to Ban Landmines, PHR shared the 1997 Nobel Peace Prize.
Along with three other organizations, at the request of the Truth
and Reconciliation Commission of South Africa, PHR prepared a report,
Human Rights and Health: The Legacy of Apartheid, a review of human
rights and ethical violations committed by members of the South
African health professions under apartheid.
PHR
has been at the forefront of integrating human rights and bioethics.
Along with the American College of Physicians and other organizations,
PHR published Breach of Trust, which analyzed the role of physicians
in capital punishment. PHR has also been at the forefront of developing
and sponsoring academic courses that integrate bioethics and international
human rights at medical schools and schools of public health.
About
the University of Cape Town
The
University of Cape Town (UCT) is a leading academic institution
in South Africa. Its Health Sciences Faculty has been deeply engaged
in addressing human rights in the health sector, including research
to promote human rights, sponsoring courses in health and human
rights as part of its undergraduate and postgraduate programs, and
its own post-apartheid institutional reconciliation process. Through
these activities it is actively grappling with key transformation
challenges facing training institutions for health professionals
in South Africa at present. Along with the Trauma Centre for Survivors
of Violence and Torture, the Department of Public Health of UCT,
Health Sciences Faculty sponsored the Health and Human Rights Project,
which provided technical assistance to South Africa’s Truth
and Reconciliation Commission in connection with the Commission’s
hearings on human rights violations in the health sector. It also
prepared a comprehensive review of human rights abuses in the health
sector during apartheid, entitled The HHRP Final Submission to the
TRC: Professional Accountability in South Africa (1997). The HHRP
was instrumental in establishing a regular series in the South African
Medical Journal focusing specifically on human rights and health.
Physicians
for Human Rights
100
Boylston St., Suite 702
Boston, MA 02116
Tel. (617) 695-0041
Fax. (617) 695-0307
Email: phrusa@phrusa.org
Web: www.phrusa.org
UCT
Health Sciences Faculty
Anzio Rd.
Observatory
7925 South Africa
Web:www.uct.ac.za/departments/publichealth
Preface and Acknowledgements
This
project grew out of a disturbing trend: Governments and other third
parties often demand that health professionals put allegiance to
their patients aside, in deference to the demands of these powerful
actors — often in a manner that violates patients’ human
rights. Although documentation of this ethical and human rights
problem, referred to here as the problem of dual loyalty and human
rights — has been most thorough in South Africa, it is unfortunately
a worldwide phenomenon. However, it is little recognized and rarely
discussed. Indeed, in the course of this project we were surprised
to see how few materials for guiding professional practice and institutional
structures exist, even in organizations where this problem is pervasive,
such as the military.
The
report of South Africa’s Truth and Reconciliation Commission
(TRC) documenting the complicity of health professionals in the
apartheid regime, provides a particularly compelling illustration
of the problem. The TRC report, based on hearings about human rights
violations in the health sector, showed how health professionals
had been complicit or silent in the face of torture as well as active
participants in institutionalized racism in health services. The
report urged the adoption of effective standards of conduct in situations
of potential dual loyalty, as well as institutional arrangements
and educational programs to ameliorate the problem.
We
believe the dual loyalty problem needs the urgent attention of individual
health professionals, national and international organizations of
health professionals, international standard-setting bodies, governments,
and civil society. For that reason, Physicians for Human Rights
(USA) and the University of Cape Town Health Sciences Faculty (South
Africa) brought together a working group of individuals from the
health community experienced in human rights, as well as scholars
and practitioners in bioethics, human rights and law, from South
Africa and internationally, to address the problem. We are grateful
to the Greenwall Foundation for its generous support of this project.
The
goals of the project are: (1) to identify the problem of dual loyalty
and human rights in its many dimensions; (2) develop an approach
to the problem that stems from internationally-accepted human rights
standards; (3) produce a set of proposed guidelines for health professionals
that would apply to all professional practice and a set of specialized
guidelines in settings that raise particularly troublesome human
rights and ethical issues; and (4) propose institutional arrangements
that can help prevent conflicts between a patient’s human
rights and state or other powerful interests in the first place.
The
Working Group convened for a meeting in November, 2000 in Durban,
South Africa to review the dimensions of the problem, to take up
the role of bioethics in addressing dual loyalty and human rights
and, to begin work on appropriate responses. The participants in
the Durban meeting are listed below. One product of the conference
in Durban was the creation of a set of sub-groups to address particular
issues, including the relevance of existing international codes
of conduct, the interplay between human rights and bioethics, the
relationship between dual loyalty and social, economic and cultural
rights, and practice in five settings where dual loyalty and human
rights problems arise frequently.
In
the two years since the Durban meeting, the Working Group has, through
its sub-groups, corresponding members and consulted experts, exchanged
drafts, tested out approaches, and ultimately produced a document
containing both an analysis of the problem and a set of proposals
to address it. It is our hope that the proposals will stimulate
wide discussion and be considered by national and international
standard-setting bodies as well as organizations responsible for
the structure of health practice, including governments, associations
of health professionals and licensing and regulatory bodies.
The
report and recommendations are available electronically at www.phrusa.org,
and http://caribou.cc.trincoll.edu/orgs_scialnce/SFR/Default.htm.
The
project was under the general direction of Leonard S. Rubenstein,
J.D., Executive Director of Physicians for Human Rights (USA) in
close collaboration with Leslie London, M.D., Associate Professor,
Head of the Health and Human Rights Division, School of Public Health
and Primary Health Care at the University of Cape Town Health Sciences
Faculty, and Laurel Baldwin-Ragaven, M.D., now Henry R. Luce Professor
of Health and Human Rights at Trinity College (Connecticut, USA)
and formerly research fellow of the Health and Human Rights Project
in South Africa.
The
Participants* in the Durban, South Africa meeting
included:
Bea
Abrahams
South Africa
Progressive Primary Health Care Network
Enrique
Accorsi
Chile
World Medical Association and Colegio Medico, Chilean Medical
Association
Laurel
Baldwin-Ragaven
South Africa
Health and Human Rights Project; Trinity College (USA)
Solomon Benatar
South Africa
University of Cape Town Department of Medicine
John H. Bryant
United States
President, Council of International Organizations in the Medical
Sciences
Nancy Bryant
United States Nursing Consultant
M. Gregg Bloche
United States
Georgetown University Law Center; Johns Hopkins School of
Public Health
John
Chisholm
United Kingdom
British Medical Association
Saths Cooper
South Africa
Psychology Society of South Africa
Mahomed
Dada
South Africa
Department of Forensic Medicine
University of Natal
Jeanelle de Gruchy
South Africa
Health and Human Rights Project
Marietjie
de Villiers
South Africa
Health Professions Council of South Africa
Carnita Ernest
South Africa
Centre for the Study of Violence & Reconciliation
Mary Faure
South Africa
Society of Physiotherapists
Costa
Gazi
South Africa
Eastern Cape Department of Public Health
Ranaan Gillon
United Kingdom
School of Medicine
Imperial College, London
Chandre
Gould
South Africa
Centre for Conflict Resolution
Paul
Gready
United Kingdom
University of London &British Medical Association
Sandhya
Gupta
United States
Physicians for Human Rights
Thembeka
Gwagwa
South Africa
Democratic Nurses Association
Erik
Holst
Denmark
ICAR Foundation-Romania
Amar
Jesani
India
Centre for Enquiry into Health & Allied Themes
Kausar
Khan
Pakistan
Medical School
Aga Khan University
Simon
Lewin
South Africa
Medical Research Council
Leslie
London
South Africa
Department of Public Health
University of Cape Town |
Percy
Mahlathi
South Africa
South African Medical Association
Charles
Malcolm
South Africa
Department of Psychiatry
University of Cape Town
Charlotte
McClain
South Africa
Human Rights Commission of South Africa
Indres Naidoo
South Africa
Former Senator
Lungisile
Ntsebeza
South Africa
University of the Western Cape
Jumana
Odeh-Issawi
Palestine
Happy Child Centre
Wendy
Orr
South Africa
Transformation and Employment Equity Office
Witwatersrand University
Karrisha
Pillay
South Africa
Community Law Centre
University of the Western Cape
Rachel
Prinsloo
South Africa
Human Sciences Research Council
Christian
Pross
Germany
Center for the Treatment of Torture Victims
Solly
Ratamane
South Africa
Department of Psychiatry
University of Free State
Norma
Tsotsi
South Africa
South Africa Dental Association
Hernan
Reyes
Switzerland
International Committee of the Red Cross
Leonard
Rubenstein
United States
Physicians for Human Rights
Ann
Sommerville
United Kingdom
British Medical Association
Hasina
Subedar
South Africa
South African Nursing Council
Paul
Theron
South Africa
Western Cape District
Surgeons Association
Adriaan
van Es
Netherlands
International Federation of Health & Human Rights Organizations
Judith
van Heerden
South Africa
Department of Primary Health Care & Family Medicine
Joe
Veriava
South Africa
Health Sciences Faculty
University of Witwatersrand
Braam
Volschenk
South Africa
South African Medical Association
Shabbir
Wadee
South Africa
Department of Forensic Medicine
Stellenbosch University
James
Welsh
United Kingdom
Amnesty International
Zeav
Wiener
Israel
Physicians for Human Rights- Israel
Boris
Yudin
Russia
Moscow State University & Russian Academy of Sciences |
Others
who did not attend the conference participated in various aspects
of the Working Group’s activities. These individuals included:
Anna
Bizos
South Africa
Physiotherapy Society of South Africa
Debra
DeBruin
United StatesUniversity of Minnesota
Sebnem
Fincanci
Turkey
Department of Forensic Medicine, Istanbul University
|
Tesfamicael
Ghebrehiwet
Switzerland
International Council of Nurses
Delon
Human
Switzerland
World Medical Association
Vincent
Iacopino
United States
Physicians for Human Rights |
Lungisile
Ntsebeza, of the Program for Land and Agrarian Studies at the University
of the Western Cape, acted as facilitator for the meeting. Indres
Nadoo, former political prisoner in South Africa and former Senator
in the South African Parliament, was keynote speaker on the evening
preceding the conference. Mahomed Dada, formerly Professor of Forensic
Medicine at the Nelson Mandela School of Medicine at the University
of Natal, acted as liaison between the working group and the Mandela
School of Medicine. Barry Kistnasamy, Dean of the Mandela Medical
School, also supported the Working Group meeting Izani Event Planners
were instrumental in negotiating the logistics for the Durban meeting
in 2000.
The
bioethics consultant for the Durban meeting was Catherine Myser,
Ph.D., who prepared a background paper on dual loyalty and bioethics
for the meeting. The project received support from Professor M.
Gregg Bloche and the Georgetown – Johns Hopkins program in
Law and Public Health.
Members
of the Dual Loyalty Working Group joined an on-line moderated list
to facilitate discussion on issues related to dual loyalty and the
project. The list was moderated by Sandhya Gupta and Nafia Tasmin
Din of Physicians for Human Rights.
Drafts
sections of the report were circulated for comments by members of
the Working Group. We note that not all members of the Durban meeting
participated in subsequent discussions and reviews of drafts, and
some members had differing viewpoints. Therefore, all aspects of
the final product do not represent the views of all participants
in the meeting. An Editorial Review Committee reviewed all drafts.
The Committee met face to face twice after the Durban meeting and
conferred extensively in shaping the final product and in writing
the introduction. The committee consisted of:
Laurel
Baldwin-Ragaven
M. Gregg Bloche
John H. Bryant
Erik Holst
Leslie London
Wendy Orr
Leonard Rubenstein
Although
not able to attend these meetings, Ann Sommerville contributed enormously
to the editing of the final document.
Members
of the Working Group participated in drafting and review of guidelines
for particular settings and to address difficult substantive questions.
Adriaan van Es, along with Chandre Gould and Zeav Wiener, led the
work group on guidelines for military settings. Leonard Rubenstein
and M. Gregg Bloche led the group on forensic health practice. Wendy
Orr chaired the largest sub-group, on prisons, which included Jeanelle
de Gruchy, Sebnem Fincanci, Jabu Ngwane, Bidur Osti, Hernan Reyes,
and Judith van Heerden. Christian Pross led the subgroup on guidelines
for health professionals evaluating refugees or in immigration settings.
Leslie London led the subgroup on guidelines on workplace settings
and drafted the section on institutional mechanisms based on information
drawn from all the settings guidelines. A subgroup researching social
and economic rights was chaired by Kausar Khan and included Enrique
Accorsi, John H. Bryant, Jeanelle de Gruchy, and Amar Jesani. Future
work of the Dual Loyalty Working Group on “toolkits”
for health professionals is led by Laurel Baldwin-Ragaven and Ann
Sommerville. James Welsh compiled and distributed existing international
ethical codes and instruments. Chapter two, describing the circumstances
of dual loyalty, was written by Leonard Rubenstein, with extensive
research assistance from Sandhya Gupta and Nafia Tasmin Din. Boris
Yudin, Kauser Khan, Debra DeBruin, Gregg Bloche, Soloman Benatar,
Laurel Baldwin-Ragaven, Leslie London, and Ann Sommerville contibuted
to the discussion of the relationship betwen bioethics and human
rights.
Thomas
Geoghegan provided research on human rights law. Lt. Col. Eugene
Bonventre, United States Air Force, provided consultation (in his
personal capacity) on problems in military medicine as did Michael
Grodin, Boston University School of Public Health. Sandhya Gupta
reviewed the products for clarity and consistency. In addition to
her editorial and research role, Ms. Gupta, along with Ms. Din,
provided invaluable support in logistics and communication. Additional
research support was provided by Genevieve Grabman and Cordelia
Frewen.
Barbara
Ayotte, Director of Communications of Physicians for Human Rights,
prepared the report for publication.
*
Affiliations are those at the time of the Durban meeting and are
for identification purposes only
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